Last Monday Brooklyn was diagnosed with type 1 diabetes. We have been trying to figure out what has been wrong with Brooklyn for quite some time. We were relieved to finally get a diagnosis, but I was completely caught off guard with this news. Brooklyn was admitted to the hospital for 4 days to get her started on insulin and to get her blood sugars regulated. It was really hard for me to watch Brooklyn get so much blood work done, and get insulin shots 4 times a day and watch her little fingers get pricked with each meal and before bedtime. It was the hardest week of my life and I didnt think I could handle another day of watching her cry and beg the nurses to stop giving her shots. It literally felt like my heart was breaking. I don't think I've ever felt this sad in my entire life. I wasn't doing a very good job as a mom holding it together either, when she cried I cried. I thought taking care of 4 healthy kids was plenty hard, I didnt think I could handle this new challenge.
Rich and I started the education classes at the hospital, nothing was sinking in for me. The diabetes educator, doctor and the nurses used words that I didn’t understand. It also didn't help that I wasn't sleeping at night, I read pamphlets and books that the doctors were giving me all night and then when I tried to sleep I couldn't stop thinking about how this was going to change my life and Brooklyn's life forever. As much as I wanted to leave the hospital, I wanted to stay there at the same time because I knew we were safe there. I felt completely inadequate to be able to take Brooklyn home and care for her.
In the hospital we shared a room with another little girl that had just had her tonsils removed, she was expected to go home the next day. As I looked over at this mom and her daughter I was jealous. I thought... this little girl will go home and recover and my little girl will go home and have to get shots her entire life. It seemed so unfair. The following day I took Brooklyn to the kids play center at the hospital and she sat next to this little boy who appeared to have cancer. I immediately felt grateful for Brooklyn's diagnosis and my attitude started to change. Brooklyn will live and long and happy life she just has to take extra steps each day to stay healthy and feel good.
My sister-in-law Amber called me and asked if I wanted her to come for a visit and help me with Brooklyn. She has a son that was diagnosed with diabetes 3 years ago, so she had been in my place before and knows how overwhelming it is. I told her that I would be ok, but deep down I wanted to scream on the phone "Yes please come help me!" I think she sensed in my voice that I wanted her to come, so she did. She flew out from North Carolina and was here before Brooklyn was discharged from the hospital. Amber came to the rescue, she taught me so much and made me feel like I could do this. We had very late nights of her teaching me the basics of how to take care of a diabetic child. More and more information was sinking into my head and I was feeling a little more confident that I could handle this. I honestly don’t know what I would have done without her help.
We are slowly getting a routine back into our home and adjusting to all of this. This is a how are day goes...
10:00am - Snack
12:00 am - Lunch - Check her blood sugars again to see if she's in her target range. Count out her carbs for lunch. Do the math and give her another insulin shot.
3:00pm - Snack
5:00pm - Check her blood sugars. Count out carbs for dinner, do the math. Give insulin shot.
7:30pm - Bedtime
9:30pm- I check her blood sugars while she is asleep, and give her another insulin shot to last her through the night.
2:00am - Check blood sugars. If she is low, I have to wake her up and give her a juice, and re-check her in 15 minutes. If she is high I give her a dose of insulin.
The next day this all repeats over again. I feel like I have a newborn again with waking up in the middle of night, it's exsausting. Hopefully I can get used to waking up like this and not feel like I am dragging during the day.
I'm grateful that there is medicine out there for diabetics, I'm already noticing a change in Brooklyn. I've been told that she will be a new person and have the energy that a 7 year old is suppose to have. Her doctor believes that there will be a cure for diabetes in Brooklyn's lifetime. It was encouraging to hear that.
I ordered Brooklyn this pillow pet for her birthday that is next week. I gave it to her early so she would have something to sqeeze with all the shots, she LOVES this pillow.
The play center was really nice, I think the both of us would have gone crazy sitting in the hospital room all day. We only had to go back to the room for meals and shots.
An art project that she made in the playcenter.
She loves all the colorful bandaides, it cheers her up.
Aunt Amber and Brooklyn.
Both of us miss her a lot. Yesteday was my first day on my own with everything, it was nice having Amber with me to double check everything I did, and it was just nice to have her there as my friend.
Amber made this darling sticker chart for Brooklyn, if Brooklyn does well with the shots during the day she gets a sticker. At the end of week she gets a prize. She also made my boys one, it's easy for them to feel left out with all the attention Brooklyn is getting.
13 comments:
I'm so sorry that you guys have had such a hard week, and that little Brooklyn has to go through this! It is so hard to watch your kids be poked and cry, I would have cired too. You are such an amazing mom, and such a strong woman! I hope to be as good as you someday! Glad that Amber was able to come and help.
Wow, that is a HUGE job taking care of a kid with diabetes. Poor girl! I am still thinking of her since you told me the news. My heart is still aching for her! Heavenly Father knew you can do it and would be an amazing mother so he made this happened to you than other mothers cuz you are a strong and amazing mom!! I admire you!! Give Brooklyn hugs for me and Kylee!
I think you're an amazing mom Teri! What a sweet girl you have. I'm so glad things are getting a little easier for you and for Brooklyn and hope they continue to do so.
I am so sorry you have to go through this! What doesn't kill us makes us stronger right and if anybody can handle this craziness it would be you! You are amazing mother with so much attention to your family and everything else you do. Brooklyn is so brave. You will get the hang of the whole shot thing I have faith in you and our heavenly father who is always by your side. Please give her a big hug from me and whisper to her that We love her and she will be okay. Im sure it was super helpful having Amber come help you out but if you ever need anymore advice even in the middle of the night Sherri says you can call her as her own Daughter Chloe (8) has diabetes too. In fact Chloe would talk to Brooklyn about it. I love you guys and wish I could be there to help, it kills me that Im not.
Oh I am so sorry Teri! But I am glad you had Amber to help you out! Family really is the best. I wish the best for Brooklyn!
OH Teri. Julie told me while we were on a run what you had been going through. I am so sorry for the heartache this week has brought. I am so glad Amber came to help you- what an angel. Hang in there and remember we're all rooting for you both.
Wow, Teri. . .you are amazing, and so is your little girl!
Teri- I'm thinking of you and cute little Brooklyn.
bless her heart!
Oh Teri I'm so sorry!! That's so hard! I'm glad that you figured out what was wrong with her though so she can get feeling better! I thought about her yesterday on her birhtday! I hope she had a great day!
Thank you so much for sharing your experience with this. Sometimes you don't realize your own blessings in the midst of challenges until someone else points them out. You are just a great mom, and like everything else, you will figure this out and it will become just one more experience you have made it through. I'll keep Brooklyn (and you) in my prayers as you guys figure this whole thing out. I am so glad you have people around you who can ease the burden a little - what an amazing sister in law!
WOW! What a week and what a life change for you! You guys can totally do this... she is an a mazing little girl with awesome parents. Before you know it this will all be so routine and old hat it will seem boring =) Glad you were able to find the problem and address it and that things are looking up! We'll keep you all in our prayers as you adjust to your "new normal"!
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